The Problem With Epidemiology Data
In Assessing Environmental Health Impacts
Of Toxic Sites
Author(s)
B. L. Allen
Abstract
In the U.S., states regularly collect cancer data for statistical and analysis
purposes. Ideally, this publicly funded information should be available by law to
citizen groups and qualified researchers. Using the example of the Louisiana
Tumor Registry (LTR), my research will show that scientists have been denied
full access to cancer data thus preventing important environmental health
assessments. Louisiana is a state with a large and geographically concentrated
petro-chemical industry that many health scientists suspect may have some
relationship with elevated cancer rates. Citizens have taken the LTR to court and
have waged a lengthy legal battle for the data. Analysis of the documents
accumulated during the legal battle reveal important, but ambiguous rules and
regulations governing cancer data nationally. My analysis will show that this
ambiguity is problematic both scientifically and from a health policy perspective
particularly when assessing the relationship between human exposure and the
proximity to toxic sites.
Keywords: cancer registries, public understanding of science, Louisiana Tumor
Registry, protected health information, Cancer Alley, epidemiology, public
records access.
1 Introduction
Questions about the effects that exposure to toxic chemicals have on the human
body resonate in our environmentally-conscious culture. But the truth is, we
know very little about the effects that many chemical pollutants have on the
body, especially in low dosages and over time. With a few exceptions, we have
no idea how they impact human health, either individually or synergistically
except in extreme conditions where one is literally poisoned by them.
Keywords
cancer registries, public understanding of science, Louisiana Tumor
Registry, protected health information, Cancer Alley, epidemiology, public
records access.
Related Book
Other papers in this volume
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